1

I understand what this project is about.

I have read [or had read to me] the Plain English Research Statement which explains what this research project is about and I understand it.

I have had a chance to ask questions about the project, and I am comfortable with the answers that I have been given. I know that I can ask more questions whenever I like.

2

I have volunteered to participate

I agree to participate in the research. I know that I do not have to participate in it if I don’t want to. I made up my own mind to participate – nobody is making me do it.

AND (as appropriate to the research methodology):
I know that I don’t have to answer any questions I don’t like.
[The researcher(s)] will not write anything down unless I agree that [he/she/they] can.
[The researcher(s)] will turn off the tape/stop filming etc… if I ask [him/her/them] to.

3

What will happen if I want to stop participating?

I know that I can pull out at any time without getting into trouble with [the researcher(s)] or anyone else.

[There may be a need to specify the other people here, e.g. if the project is using the records or resources of an
indigenous organisation, that organisation or its staff].

AND (choose as appropriate):
If I pull out, none of the information I have given [the researcher(s)] can be used in the research.

OR [if the research data will be corrupted by a person removing themselves retrospectively or without their discontinuation being recorded. It is strongly preferred that the subject be given the option of retrospectively withdrawing permission to use data gathered from them if they withdraw their consent for participation]:

If I pull out, [the researcher(s)] will be allowed to use any information that I have given them before then, and they will be able to write down that I have stopped participating. But they won’t be able to make me keep participating if I don’t want to.

4

How the research will happen [This section should describe what the research participant agrees to do, e.g.:] I agree that [the researcher(s) – or one of them of an appropriate
gender if gender restrictions are appropriate] can interview me for the research [and write down or (video) tape what I say].

OR: I agree to talk about questions which the researcher gives us in a group of people. This is called a ‘focus group’. I agree that the focus group can be (video) taped. [Or the researcher can sit in and take notes, explain conditions of focus group, etc.]

OR: I agree to visit [X location] with [the researcher(s)] to talk about [e.g. its dreaming stories and the people who should look after it].

AND: (if appropriate):
We won’t talk about [a particular kind of topic]. I won’t pass on any [particular kind of] information. If I accidentally tell [the researcher(s)] these kinds of things, they will not record them.
I understand the research will take place over [number of days or months in total] During that time [the researcher(s)] will interview me [how often] each
interview will last for about [time]. A group discussion will be held [when] and will take about [time ‐ how long].

5

Having my picture taken or being filmed (including when performing) (If previous clauses don’t already provide for photography or cinematography):

I agree to be photographed/videoed for the research project.

AND EITHER: Those tapes/photos/videos/DVDs are just for the researcher to use for this research. I don’t want other people looking at them (unless I say they can).
[Refer to the section on storage of information.]

OR: I agree that those tapes/photos/videos/DVDs can be shown to other people.

AND (if appropriate):
I agree that those pictures can be put into a book or magazine or shown on TV or the internet

OR If a performance is to be recorded for public display :

I agree that [the researcher(s)] may record my performance [provide identifying details, e.g. of ABC ceremony at DEF next week] and that they can use that recording for [e.g. to make a documentary for SBS, to show their students at X University, to show at the AIATSIS conference etc. Be clear about whether other copies of the recording can be made, by whom and for what purposes].

6

Getting paid for participating in the research
I know that I won’t get paid for participating in the research project.

OR (if appropriate):
I will get paid [insert amount] for participating in this research project. This is a payment for my time [or for some other reason, e.g. because of the valuable knowledge that I will contribute to the research].

AND (if appropriate, e.g. in social or public health research):
Just because I get paid does not mean that I have to give answers which I think [the researcher(s)] want(s) me to give.

7

Risks and benefits of the research
I understand that the research may have the following benefits [set out any listed in the Plain English Research Statement].

AND (if appropriate):
I understand that the research is not guaranteed to achieve these aims [and possibly some more information, e.g. ‘it depends on what [the researcher(s)] find out’ or ‘it depends on whether the government listens to what [the researcher(s) say’].

I know that the risks of the research are [set out any risks, e.g.:

•  for a project which requires participants to discuss trauma or depression, ‘that talking about those things with [the researcher(s)] might make me feel worse’;
•  for a project which aims to assess levels of undetected criminality ‘that if I tell [the researcher(s)] what drugs I took, the police might be able to force [the researcher(s)] to dub on me’]
•  for a project which uses focus groups ‘that, while the researchers will ask other people in the group not to discuss focus group business outside the group, they may not be able to stop them doing that’.

8

Who will be the authors of the research?
I understand that [the researcher(s)] want(s) to write about the research in a [book, article in a university journal, report for X organisation etc. – adjust to suit the medium, e.g. video, DVD].

AND (choose whichever is relevant):

I understand that the researcher will [write the book, produce the video etc.] by him/herself/themselves. I won’t write [etc.] it with him/her/them. [Add other relevant information, e.g. ‘but my story and photo might be in that book’.]

OR I understand that [researcher(s)] want to [write the book, make the video etc.] with me [and any other co‐authors, producers]. I agree to become an [authors, producer etc.]. My name will be mentioned on the [front cover, titles etc.] as an [author, producer etc.].

9

Will people find out personal things about me from the research?
I agree that my name and other following personal information can be mentioned in any [books/videos etc.] that come out of this research. I don’t mind if people find out these things about me from [reading the book etc.].

[include the personal information to be revealed here]
AND (as appropriate):
[The researcher(s)] will check with me before they put the [book/video etc.]
out that it only contains the accurate personal information.

OR I understand that my name will NOT be mentioned in any [books/videos etc.] that come out of this research, and that people won’t know who I am from [reading/watching etc.] the [books/videos etc.]. [It may be appropriate to mention here any blinding strategies, e.g. ‘when I am talking into the camera, my face will be blacked out so the police won’t recognise me’ or [the researcher(s)] will just call me a number or fake name, like everyone else who participates in the research’].

AND (as appropriate):
If [the researcher(s)] keep(s) a record of what I said [or did] during the research with my name on it [or which could be used to identify me], [she/he/they] will keep it in a locked filing cabinet in their offices in [location] or in a secure location on a computer. After two years [or other appropriate period], [the researcher(s)] will either destroy this record or give it back to me. [With the participants’ advance consent, it may also be possible to transfer such records to an organisation which will use them for purposes
directly related to the research – if this is an option, address it now.]

OR If [the researcher(s)] keep a record of what I said [or did] with my name on it [or which could be used to identify me], I want them to give it to AIATSIS for safekeeping. I want AIATSIS to let my family [there may be a need for specificity about individuals here] or [eg other language group or Aboriginal] people to have access to it, but I don’t want other people to read it without my permission of my wife/husband, children or grandchildren after I die.

OR If [the researcher(s)] keep a record of what I said [or did] with my name on it [or which could be used to identify me], I want them to give it to AIATSIS for safekeeping. I don’t mind if AIATSIS lets other researchers read this record.

10

What about culturally restricted information or things?
[Only insert a clause on this if you propose to collect culturally restricted information etc. – otherwise, rule it out under 4. ‘How the research will happen’ above].

I understand that, if [researcher(s)] find out secret or sacred information, or are given secret or sacred things, they won’t tell or show them to the wrong people.

I understand that, if [the researcher(s)] collect any secret or sacred information or things, they will put them into [the keeping place at X location; AIATSIS for safekeeping]. Other people should not be allowed to access this information or these things without [my and/or someone else’s] permission.

OR I agree that, when [the researcher(s)] have collected all the information or things they need, they will talk to me [and/or whoever else has the authority to discuss them] about what to do with any secret or sacred information or things.

11

Who will have access to the research results?
I understand that this research will produce a report for [ABC indigenous organisation or other body]. Members of the organisation will be able to read it, and so will other Aboriginal people who participated in the research. [The researcher(s)] won’t give a copy of the report to anyone else without [ABC’s] permission. [There may be a need for further restrictions, e.g. on who can view it and for what purpose.]

OR I understand that anyone can read the book/article/report [watch the video, DVD etc.] that comes out of this research, and that even people on the other side of the world might see it, maybe on the internet. That’s OK with me.

AND (if appropriate):

I agree that [the researcher(s)] can present information from the research at conferences even if I’m not there. [If there’s no co‐authorship, add ‘I understand that [the researcher(s)] can do this without asking me first’].

AND [The researcher(s)] will give me [or someone else, e.g. an indigenous organisation] a copy of any books, articles, databases, CDs, videos or DVDs that s/he writes or produces out of the research.

12

Intellectual property
I understand that [the researcher(s)] will hold copyright in any books, articles, databases or conference papers [or tapes, CDs, videos, DVDs etc. – add or delete research products as appropriate] produced as a result of this research.

This means that:
[The researcher(s)] will be able to reproduce the information that is in these books, articles, databases or conference papers (or tapes, CDs, videos, DVDs etc.) in other places or for other purposes (e.g. on the internet) without asking for anyone else’s permission, [The researcher(s)] will be able to let other people reproduce that information without asking for anyone else’s permission.

If the books, articles, databases or conference papers (or tapes, CDs, videos, DVDs etc.) make any money; [the researcher(s)] will keep it, [The researcher(s)] can pass copyright onto people I don’t know (e.g. their own children), who also won’t have to ask anyone’s permission before they reproduce the information in the books, articles, databases or conference papers (or tapes, CDs, videos, DVDs etc.), let other people reproduce it or keep any money that these research products make.

AND (as is usually appropriate):
[The researcher(s)] will grant [ABC indigenous organisation, nominated individuals or some other choice that represents the research participants] an irrevocable perpetual license to use this copyright material for any purpose whatsoever.

OR (this is the preferred option)
[The researcher(s)] will SHARE COPYRIGHT in any books, articles, databases or conference papers (or tapes, CDs, videos, DVDs etc.) produced as a result of this research with [ABC indigenous organisation or, where none is available, a small number of indigenous people, eg research participants].

This means that:

[The researcher(s)] CANNOT reproduce the information in those books, articles, databases or conference papers (or tapes, CDs, videos, DVDs etc.) in other places or for other purposes without getting permission from [ABC or other nominated individuals] first;

[The researcher(s) will not be able to let other people reproduce that information without getting permission from [ABC’s or other nominated individuals’] first;

If the books, articles, databases or conference papers (or tapes, CDs, videos, DVDs etc.) make any money, [the researcher(s)] will share it with [ABC or
other nominated individuals];[The researcher(s)] will share [equally, or in another specified way] any money that the books, articles, databases or conference papers (or tapes, CDs, videos, DVDs etc.) make with [ABC or other nominated individuals].

If [one of] [the researcher(s)] passes on their copyright share to another person, that person will NOT be able to reproduce the information or let other people reproduce it without [ABC’s or other nominated individual’s] permission.

OR (for scientific research, e.g. into applications of traditional medicines):

Where a patent application is going to be made from the research results, [the researcher(s)] will include the names [ABC indigenous organisation, a small number of indigenous individuals] on any patent application.

[Where a patent application is envisaged or likely to arise out of the research, indigenous participants must get independent legal advice about intellectual
property issues.]

[PLEASE do not include in your Informed Consent Form a clause stating that indigenous people ‘retain’ ‘intellectual property rights’ in ‘indigenous knowledge’. This is misinformation: the law recognises no such rights in knowledge which has not been converted into a material form, scientific discovery etc.]

13

Complaints
I know that, if I am worried about the research project, I can ring up [the
researcher(s)] on (phone number) and talk to him/her/them about it.
I know that I can also complain to:
Director Research Business
Pravin Adip
Email: pravin.adip@aiatsis.gov.au
Phone: 02 6246 1116

Or

Ms Chrissy Grant, Chair of the AIATSIS Research Ethics Committee,
Phone 02 6246 1145
I can also write to the Ethics Committee at AIATSIS,
GPO Box 553, Canberra, ACT 2601
This is an independent committee – its members do not work for AIATSIS.

Or

If I think there has been a breach of my privacy I can write to the Privacy
Commissioner.
Post: PO Box 553, Canberra ACT 2601

I have read this Informed Consent Form and I agree with it.

Signed by the research participant_____________________________________________

Name of the research participant______________________________________________

Date___________________________________

OR

I read this Informed Consent Form aloud to [name of research participant] and I believe that s/he understood and agreed to it:

Signed by witness___________________________________________________________

Name of
witness_____________________________________________________________

Date____________________________________________

AND:

Signed by or on behalf of the researcher(s)_____________________________________

Name_________________________________________________________________

Date_____________________________________________